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The Kids’ Cancer Project funds 53 research projects across Australia, with many of them requiring help from families and patients who have experienced treatment for childhood cancers.
Some are simply surveys and interviews, while others require participation in post-treatment programs designed to help kids with cancer survive and thrive.
All participation is completely voluntary, but as you know, it all helps to ensure that children with cancer, both present and future, receive the best treatment possible.
Below is a list of opportunities for families to be involved in research projects. This list will update as projects finish up or new ones come along.
If you would like more information regarding anything mentioned above – or the projects below – please contact us at support@tkcp.org.au.
ANZCHOG is calling upon Australian childhood cancer patients, families and carers, friends and advocates to share their insights and experiences with paediatric cancer clinical trials, as they look to create an Educaxtion Hub for families about the process. By taking a short feedback survey, inputs from you will help ANZCHOG understand what information matters most, how it should be presented, and what would make it easier for families to make confident, informed choices about clinical trials.
The University of New South Wales is inviting young people (18-24yrs) with chronic illness, parents of young people with chronic illness, paediatric healthcare professionals and adult healthcare professionals to participate in a short online survey to help develop a new patient-reported outcome/experience measure (PROM/PREM) that can be used to assess a young person’s transition from paediatric to adult healthcare services.
Your input will ensure the measure truly reflects what matters most, in terms of defining what is a successful transition and what is a positive experience. The anonymous survey will take approximately 15 minutes to complete.
To begin the survey, click here.
University of New South Wales are looking for Adolescent and Young Adult (AYA) cancer survivors from NSW to attend a workshop that will assist in co-designing an age-appropriate survivorship care model for AYAs.
Participant requirements are the following:
Participants can attend a single 45–60-minute workshop either online or in person at UNSW’s Kensington Campus.
A study from Australia and New Zealand overseen by the Murdoch Children's Research Institute is surveying clinical staff and parents to gain a better understanding of the types and frequency of psychosocial care provided to patients and families during all phases of their cancer journey.
The institute is looking for parents from NSW to be surveyed for the study.
