“Matilda’s medical team told us about these new T-cell trials available in the US. They would likely cost us around 750,000 US dollars, which we didn’t have, but we had to do something! I applied to two of them and was rejected from both because Matilda didn’t quite meet the criteria. The third was also a longshot so I held off applying so that in my mind we still had some ‘hope’ if she relapsed.
“I couldn’t understand why we didn’t have access to trials with such potentially game-changing treatment in Australia.”
With no other options, Kyle and Carmen agreed to stop some of the post-transplant medications to allow Matilda’s own immune system to fire up and fight off the potential relapse. After four agonising months, unsure if Matilda would relapse or not, the news came in – her new immune system was working, and Matilda was cancer free! Kyle says:
“When we got that all-clear call we celebrated, dancing around like lunatics – she was supposed to relapse and not survive, and instead we had this miraculous outcome, and now eight years later, she’s a healthy little girl and is considered ‘cured!’.
“All those little things made a difference, and sequencing her specific MLL genes helped to inform all the decisions that the oncology team were making here in Brisbane.
“It helped get her into remission, it helped to keep her in remission during her bone marrow transplant and helped get her through her relapse scare too. I still believe that this personalised sequencing saved her life.”
Matilda’s story is inspiring on so many levels. It’s an incredible example of how gifts from people like you have a very real impact – in this case, the research that allowed doctors to sequence Matilda’s MLL genes was vital to saving her life.
With your ongoing support, we’re committed to both helping fund ground-breaking kids’ cancer research and helping kids like Matilda access the best treatments available through clinical trials. Matilda’s recovery is remarkable, and she wouldn’t be alive today without previous research, but very simply, it’s not right that kids like her can be left with no options, unable to access the newest treatments here in Australia.
Following Matilda’s miraculous recovery, her family have become dedicated supporters of The Kids’ Cancer Project, determined to help fund more life-saving research, giving other kids better access to treatments that can make a significant difference to their lives.
Your ongoing support is vital in helping make that possible. Thank you.
With a gift of $108 today, you could fund a researcher for two hours as they develop lifesaving new clinical trial drugs for kids like Matilda.