As Maia’s treatment progressed, it became apparent to Ellalee that the social isolation for her young and usually playful daughter was nearly as big of a challenge as the treatment itself. She says:
“You know it’s going to be hard, but one thing I never expected was how lonely her treatment would be for her.”
“Because of the intensity of cancer treatments on her little body weakening her immune system, it hasn’t been safe for her to see her friends or go anywhere there are other kids. In reality, her treatments have also made her too weak to do anything or even get out of bed for much of her time in hospital.”
“I’ve found that being in hospital for quite an extended time really suffocates her. And it becomes their life. So even out of hospital, I find she talks about her treatment, she talks about her port, she talks about just hospital and medicine and stuff − because that’s her life for now. And it’s quite sad, you need the small things to keep them a kid and keep them distracted from that."